Living with dysautonomia can be a nightmare if left untreated.

We want to improve people’s lives by raising awareness about this disorder and its related conditions.

Who we are

We are a group of doctors and patients from Mexico who came together to raise awareness about dysautonomia and its implications, provide financial and medical support to find a diagnosis and a treatment for dysautonomia or related conditions, share testimonies of patients who have dealt with problems resulting from dysautonomia, and contribute to the wealth of information currently available in regards to dysautonomia, its causes, symptoms, medications, ways of diagnosing it and lifestyle adjustments, to help people regain their quality of life.

Our mission is to educate about dysautonomia so that millions of patients around the world can identify their condition, get a right diagnosis, receive treatment and regain their quality of life.

How it started

This awareness campaign is the result of Fátima’s story. Born and raised in Mexico City, she was a healthy teenager back in early 2020 when, from one day to the other, her life changed dramatically. Fátima started reporting severe pain in her stomach, nausea, lack of appetite, bloating and slow motility. After visiting probably more than 50 doctors from various specialties in two years, she was diagnosed with gastroparesis, a gastrointestinal functional disorder generally caused by diabetes and supposedly incurable. However, Fátima tested negative for diabetes and doctors were unsure about the root cause of this uncommon disorder.

Three years went by since the beginning of her symptoms and no medication worked to eliminate her pain or nausea, causing her immense suffering. However, one day Fátima decided to be tested for dysautonomia because of other symptoms apparently unrelated to gastroparesis, and the result came back positive. In consequence, she started taking medication for this disorder and a couple of weeks later, her “incurable” gastroparesis was gone. Completely gone, no symptoms whatsoever. It turns out, after talking with some cardiologists and neurologists familiar with dysautonomia, that her gastroparesis was a symptom of dysautonomia. With this information new to her, Fátima and her family decided to raise awareness about this disorder and its resulting conditions to prevent other people from suffering for years without an answer about their symptoms, in contrast to Fátima.

Want to know more about dysautonomia?

Please visit our Home page or click here to find out more about the definition of dysautonomia, its causes, symptoms, types, related conditions, and treatment.